The rare disease
education gap affects


The only specialty-specific platform for rare disease information and education


Learn and connect directly with your target audience

Innovative approaches to help meet clinical study enrollment goals

Rare Consulting & Research

At Rare Expertise we know how to target and communicate with the many varied audiences involved with these diseases so the value of your brand is understood

Personal Mission and Professional Expertise

Founder & Parent of a Child with a Rare Disease
Jack has been doing biopharma marketing for more than four decades. The past 8 years in rare diseases. Like many individuals in the rare disease world, he also has deep personal experience with rare diseases.
Founder & Parent of a Child with a Rare Disease
Jeff is an industry veteran with more than 20 years of healthcare communications experience. Much of his career has been spent working with biopharma on very specialized products. As a father of a very special boy with a rare disorder Jeff is passionate about finding more effective ways to educate and empower patients so they may advocate for their own care.